Day trip to MUSC went well. Second opinion is that more of the tumor can be removed, an adjustable shunt installed in my head will possibly lessen the headaches (this option would require them tying off the current shunt and waiting a day or two to observe the results). Also another plate can be installed to cover the hole. All of these options would require more surgeries, a minimum of two. And more head shaving. And possibly more complications.
Here’s how I’m feeling. The headaches seem to be easing up. I’m learning ways to minimize them and have even had a few mostly pain free days provided I consume lots of coffee and recline often. Still experimenting though. And this easing up may be due to the spinal fluid amount leveling out. It’s an ongoing experiment.
I’m not comfortable with anyone else digging around in my brain. I’m lucky to not have lost much of my vision. I’m still thankful for Dr. Bucci and his wisdom. I’m glad he didn’t dig too much.
Rusty and I need to do some research. I failed to drink enough coffee today and I feel it. It’s crazy the benefit I’m getting from consuming a lot of coffee. And I’m pleasantly surprised that it’s not creating anxiety. I used to be unable to drink a lot of coffee. That’s another head scratcher but something else to be crazy thankful for.
Tomorrow I’ll stay in bed a little later and move to the recliner and drink a few cups of coffee and should have a good day. Rising slowly with no pressures. And no pressure. 😂 No low pressure.
I’d LOVE LOVE LOVE for it to naturally level out. It’s possible. And may take a while. But recovering from another surgery will definitely take a while.
Oh! I drove again today. Not far but I was in the driver’s seat. And I was not afraid. Cautious yes but not afraid.
Progress. I’ll take it!
Train Bumor 